The problem with illnesses like CRPS is it is kept so quiet the access of information is limited. Granted it is hard illness to describe let alone live with.
As a person still new to living with this illness it has a nasty habit of catching me out. The most annoying fact I am still getting used to is the fact what should be a common cold with light aches becomes a form of torture. I am trying to describe a whole new level of pain. As all normal patterns of pain go out the window and is replaced by pure random pains that take you to the level of near black out
Bare in mind I am only a stage 1sufferer I can only imagine what life is like for a sufferer of a higher level. I have heard from people who are medically diagnosed with stage 2 or 3 and the things that they endure is that of my nightmares . At the moment I am stuck in bed with a virus that decided to flare up every joint with a historic injury, and to be honest I was feeling very down about it, especially now we finally have some nice weather . Then I hear from a cyber friend who has ended up in hospital having blacked out at the top of the stairs from pain. Actually this is the second cyber friend in as many weeks to do that. It is then I realise how lucky I am to only be a stage 1 sufferer. But it doesn't make the pain and frustration any less.
So I am getting to use the down time to catch up on my blog both reading and writing and count my blassings.
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Please feel free to leave a comment or add to this. Its only my thoughts on life. I just raise the questions in my mind.