I am really new to this so bare with me please. I want to write the reality of living not with one but three chronic illness's in and real but non depressive way.
So to start I will give you a brief summary, and I mean brief. My name is Sharon, or Roni if you know me cyberly (mainly cos I hate any other abbreviations of my name unless you have known me for years) I am on a fast track to 40 years of age something we can all celebrate later cyberly. I have had two chronic illness's since I was 18 a back injury from a badly constructed chair that fractured a vertebrae in my spine and Mastoiditus which is a progressive infection that eats through the bones in your ear ruining your hearing and if untreated kills you from septicaemia as it infects the blood surrounding your brain. In the last year due my clumsiness I broke my wrist for the 5th time in 10 years and due to incorrect plastering I have also gained CRPS stage one as my 3rd chronic illness. I have other minor conditions as you hear over the blogs but please excuse the dyslexia in advance.
Up to recently none of these conditions have done nothing too serious to my life but increase my sick leave and I have lived and worked as any other person in the community, if any thing I have lived harder and partied harder than most as I had more to prove. I lost my career in music due to hearing loss so I changed career, but i am still keen on the performing arts of any form. I am also a car nut as you will hear later and move heaven and earth to get to the events I want to go to.
I am a lucky bunny as I have a great set of friends who help me achieve a lot of my dreams and support me when the world comes crashing down around me, and but for them I would be a very miserable human being. To them I owe a lot of thanks. A few years ago I discovered the world of twitter whilst I was recovering from swine flu, since then I gained even more friends and so my life improved.
The thing with chronic illness is alot of the time you look and act normally so when it hits hard you crash and burn and it often comes as a shock to those around you and at the moment I am living though a major crash. My spinal injury has decided to celebrate my 40th early by completely relapsing to such an existent it is worse than the original break. This is leaving me in great pain and finding it almost impossible to walk on some days. That said I decided to take it head on despite the fact I am facing an uncertain future with it. So over the next few weeks I am off to the paraolympics to watch the horse riding. Sounds easy yes but seeing as it look me 30 mins to walk a 5 min walk yesterday this a big a challenge where failure is not a option Some how I will make to Greenwich by 12.30 and I will sit and watch a fantastic sport performed by people worse off than me. I am also just imformed in September I am off to a motor stunt show thanks to a friend who has never given up on me even when I have slowed her up cos I can barely walk at events.
This is what I hope to achieve through my blog, a diary of living with these illnesses whilst still trying to have a near normal life, hopefully the highs will balance out the lows. For every dusk there is a dawn and thats how I look at life. I am not saying I am happy 24/7 because I am not and doubt any one is really is but I want to show there is hope and future with these illnesses and there is no shame in saying yes I am ill... so what.
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Please feel free to leave a comment or add to this. Its only my thoughts on life. I just raise the questions in my mind.